What is Down Syndrome?
1) Down syndrome was named after the doctor who first documented it, a
British physician named Dr. Langdon DOWN. It is NOT a reflection of the
condition itself.
2) Down syndrome is not caused by maternal abuse (drugs,
alcohol, smoking, etc). It is a genetic "mismatch" at CONCEPTION. ( A lot of
birth-moms struggle
because they wonder what they did to cause this to happen to their child).
3) In a typical child, you have 23 PAIRS of chromosomes. In Down syndrome, you
have 3 copies of the 21st chromosome instead of just 2. Down syndrome is also
called Trisomy 21. There is also something called MOSAIC Down syndrome,
where only some of the cells in a child's body carry that 3rd copy. These
children are generally higher functioning with fewer medical complications.
4)
Children with Down syndrome always resemble their parents. They are not freaks
or misshapen or deformed. My son looks exactly like his grandfather. The
resemblance is striking!
5) The extra chromosome affects every child in a different way. A good number
of children born with Down syndrome have minor heart defects, which are usually
surgically corrected at about the 6 month age. Sometimes it will cause significant
health issues, like respiratory problems, major heart defects, and
gastrointestinal perforations. That is the outside 1%. Reece was blessed to
not have ANY health complications! Every child with Down syndrome has a
different learning capacity, a different personality, a different soul, just as
every typical child has!
6) When you get your new child home, he/she will be able to be added to your
family health insurance without problem. Adoptions are considered births, and
do not count as "pre-existing medical conditions". She/he will also most likely
be eligible for Medicaid, which would cover all of your co-pays, prescriptions,
doctor visits, surgeries, ANYTHING. We have never paid a single penny for
Reece, not ever.
7) Down syndrome is synonymous with THERAPY! As an infant, these children
(and others with disabilities), receive nearly free
early intervention services. First PT, then PT and OT, then they added speech.
At the age of
3, they go to our public schools in special classes (which by the way, I wish
every school teacher was trained this way...my typical son is going to get
GYPPED). The bus comes and picks Reece up every morning at our door.
He loves his drivers, he loves his teachers, and he is the star everywhere he
goes. He/she will have an IEP (individualized education plan) which documents
their strengths and weaknesses, and determines goals for the year and how they
plan to achieve those goals. IEP's include the parents as well!! Personally, I
think EVERY child should have an IEP....my own little Owen (pictured at right)
will have his own strengths and weaknesses, even without Down syndrome.
8) People are not going to point and stare at your child who has Down
syndrome. Birth parents always struggle with that fear. People WILL come talk
to you and love on your child because they themselves have known someone who
has Down syndrome. Everyone who has ever been exposed to Down syndrome is a
changed person in the most positive of ways. These children and adults are
truly inspirational. They are messengers from Heaven, I truly believe that.
You will be proud as a peacock to have a child with Down syndrome. You are
joining an incredible FAMILY, and your position as the parent of a child with
Down syndromes is a highly coveted one! Did you know that there is a list of 200
families in the US WAITING for domestic Down syndrome adoptions? That is what led me to
start Reece's Rainbow...to raise awareness of the great need abroad, and how
many children are waiting for families.
9) One feature that impacts all children with Down syndrome is low muscle
tone. It causes them to take longer doing things like sitting up, rolling over,
crawling, walking, climbing, hanging. But they always get it, it just takes
longer to build up their strength. And my God, how many kids do you see in the
Special Olympics? That is an amazing feat, even for "normal" people! Low
muscle tone also accounts for that common "tongue thrust". Sometimes, early in
life (birth to 18 months), it can cause kids to have a little trouble chewing or
swallowing. This is almost always overcome, and your child will go on to
have a healthy appetite!
10) Other children in your family will thrive with a new sibling with Down
syndrome in their lives. Growing up,
you don't need to tell them anything more than "he/she needs a little extra
help", because that is the truth. Down syndrome will be what they know the rest
of their lives. They will be better people for having a sibling like this in
their lives, they will be more sensitive to others with disabilities, and they
will grow up to be passionate, service-minded adults. By choosing to adopt a
child with Down syndrome (or any other disability), you set an incredible
example of love, faith, and compassion for others in need. Don't think for one
second that this "lesson" won't filter down to your other children. You
serve the Lord and you share the teachings of Jesus in the gift of life you give
to any adopted child.
11) Children with Down syndrome definitely benefit from having siblings
to learn from too. Reece was my first child, so he didn't have any examples.
Now that Owen is 2, those two are like twin tornados. They both learn
so much from each other.

Reece and Owen Dante and Isabella
Outside of all of the above, I can tell you without a doubt that you will never regret your decision to adopt a child with Down syndrome. Every adoptive family faces adjustment issues in the early going after you return home. That is unavoidable. But the opportunity you have to change the course of a child's life forever...it's so powerful and so beautiful. Don't think twice....follow the "word".